Showing posts with label NAS. Show all posts
Showing posts with label NAS. Show all posts

Thursday, 19 July 2018

The wait for an autism diagnosis

Children by clock face

Imagine your child reaches three years and still doesn't say a word. They don't point to anything, comment or smile. They sit and repeat patterns of play over and over again and get upset if they are disturbed.   You have some suspicions and after chatting with a health visitor you think... may be my child is autistic?

Thursday, 15 March 2018

The benefits of a few autism friendly thoughts

Autistic boy at a playgym

Going out with my kids is usually a little challenging, but we are getting better at it.  It's not so long along that the idea of going out on my own with our three kids meant I'd stay inside instead.  After all the kids are fine in the house and it's only later they struggle after being in all day.

This post has been updated.  Read this post >>

Wednesday, 3 May 2017

WonderfulWednesday: UndiagnosedDay

child with magnifying glass

This week's wonderful Wednesday share is a shout out to a few people raising awareness of those undiagnosed. Last Friday was Undiagnosed Day.

Wednesday, 4 May 2016

#WonderfulWednesday: Walking into a room full of people is like trying to look at the sun

This week's wonderful Wednesday share is from a Too Much Information post on The Guardian.  It's an article written by eight year old Beatrix Finch who has Asperger's Syndrome where she describes what's it's like being her everyday.

I love anything that gives me an insight into what it might be like to be on the autistic spectrum. I wonder if a breeze feels like a gale or if the sun is like a blinding light when I'm out for a walk. 

I wonder if the feeling of being in a swimming pool is like me turning up with the aftermath of  a migraine.

I'm amazed when our son overcomes his fear of sudden noises to be amazed by a fireworks display.

What I think is wonderful about this article is that although Beatrix describes of her some curious reactions to the world around her she's not sorry for this. At eight year's old, this girl has a good understanding of how things make her feel and attempts to interpret this for the neurotypical amongst us.

If  you haven't read it already, please go over and have a look.

Our Links
Our blog - Gale winds a low sun - is this what it is like for my autistic sons
Our blog - Swimming Gala - Never prouder of last place
Our blog - Turning fears into fancies at the fireworks

External
NAS - Too Much Information
Guardian - 'Walking into a room full of people is like trying to look at the sun'

Wonderful Wednesday autism story

Wednesday, 13 April 2016

#WonderfulWednesday: Sights and Sounds video by the NAS

My wonderful Wednesday share this week is a video I saw on Facebook from Upworthy, that originally came from the National Autistic Society. Unlike most of my shares I'm not sharing it because it made me feel particularly happy. I think the video is wonderful because I wonder on a daily basis what life must feel like for my boys and this video attempts to show me that.

Yesterday I wrote about what I thought it might be like having Dyspraxia, and how mentally tiring it must be to be constantly fighting to get your body to do what you want it to. I thought it might be a bit like trying to write with the wrong hand.

A few months ago I wrote about going for a walk on a blustery bright day and how I found it difficult to see anyone properly and couldn't hear when anyone was shouting out to me.  I thought it might be a bit like that on a regular day for my boys.  Realising the kind of things Anthony coped with when going to a swimming gala nearly brought me to tears.

The more I understand what's it's like for my boys the more I can simply be there for them. The more others can imagine what it might feel like, the less stigma there will be attached to my boys actions and conditions.  And that's wonderful.

It's a simple video attempting to show what's like for an autistic boy wondering through a Shopping Mall.  Go check it out and let me know what you think.

Links
Our blog - Gale winds and a low sun - is this what it's like for my autistic sons?
Our blog - Motor planning skills reminder
Our blog - Never prouder of last place - Anthony's swimming gala

External Links
Upworthy
National Autistic Society

autism in the mall

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Monday, 7 March 2016

Autistic Anthony's always to blame, problems on the school run

A quarter of people with autism are non-verbal. They don't talk at all and may use other methods of communication. Our eldest son Anthony can talk well. He attends a regular mainstream school.  But that doesn't mean he's always understood. His honesty and difficulty communicating often means that without someone there who understands him, he is blamed for what's gone wrong.

Such an event happened on our way to school last week. Our school run, like many family's, is a busy one. David goes to a specialist ASD unit but we are lucky that this is located half a mile on the otherside of Anthony's school. This means we drive to David's school and park then Jane goes in buggy and Anthony goes on his scooter while we run this get to Anthony's school on time.  Yes, every single school day we are seen running across a cemetery. The traffic is so bad that it is more consistent to cut through the cemetery, with many other parents, than it is to try and drive and find somewhere else to park. Without the scooter for Anthony, we would be late everyday.

But with the scooter comes an extra hazard. We have practice stopping at roads and missing objects a lot. 

"Stop at the road"
"Look out for the gentleman" 
"Say excuse me"
"Careful by the buggy" 

These things get hollered a lot. 

Anthony has slipped on ice once this year, but on Friday it appeared he'd scootered straight into a little girl walking to his school.  It happened soo fast. My view was blocked for a second as we past a tree and then suddenly the little was on the floor and Anthony was stood their apologising. "I'm sorry," he said. "I couldn't get past. I hit her."

The girl was probably about five or six.  She was very upset, there was a lot of tears.  The girl's mother was giving her lots of hugs and said that these things happen. She even said for us to go so as there was no need for us both to be late for school. I think mostly the girl was just a bit surprised, but it looked like she'd hurt her hand and bumped her knee as she had fallen. I couldn't help feel guilty. I should have been closer, I should have shouted more warnings to Anthony. 

Then by the time I'd dropped Anthony to his class and talked to him and Jane, who was still in buggy, about being careful, I felt guilty in a different way.

I saw some great quotes on Twitter from The National Autistic Society and the AutismCon on Saturday.   According to a speaker, 99% of public say they have some understanding of autism but 84% of autistic people feel they are not understood. 

By the time Anthony had got to school I had determined by some answers from him (but mostly by conversing with Jane who is nearly three in comparison), that the little girl had infact stepped in front of Anthony and thrown her hand out to the side to point at something. Anthony had been passing but still hit her hand.


Despite the mum having said that these things happen I still felt like I should have defended him in some way. I felt guilty for almost assuming he was to blame.  I wanted to bump into the lady on the way back to our car, though what would I have said? "Excuse me, actually it wasn't only my son's fault that your daughter got hurt?"  Of course not, because I think the same, these things happen.

Anyone when they are in a stressful environment or hurt can have difficulties communicating. People whose first language is not English but can converse in it perfectly well can have difficulty and revert to their native tongue when stressed or in pain.  It's the same for lots of kids. My son will revert back to basic communication. "I hit her." He absolutely did hit her hand. "I couldn't get past." Well, no, neither would I if a hand was suddenly thrust into my path. "I'm sorry." Of course, no one wants anyone else to be hurt. 

I guess mostly I'm just aware that one day, these difficulties might have more serious repercussions. He's not going to grow of autism. What if he was asked to make an instant police report or appear in court? What if he was involved in a car accident? And this brings up the other point I saw from AutismCon. John Wilson said, "How do you communicate you are different if you have challenges with communication?"

This is undoubtedly something my boys and countless other autistic people face. And we will have to figure out how to help them with this.  He can learn. In the meantime, I can be proud that Anthony was very truthful about his actions, he didn't try and hide from what had happened. I can be proud that he was concerned for the little girl that was hurt. I can be pleased that his sister was there to help clarify what has happened. And I can try harder to keep up with him, so I'm right there if something happens. 

How do your kids handle confrontation or stressful situations? 

Links

External links
National Autistic Society (NAS) - Conferences


Autistic child scooter on school run through cemetery

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Cuddle Fairy


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Mummuddlingthrough

Diary of an Imperfect Mum: Family Fun Linky

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