tag:blogger.com,1999:blog-5349668044326313600.post6997629818735091109..comments2024-03-29T02:24:39.165-07:00Comments on Rainbowsaretoobeautiful: Without an ASD diagnosis, we would notAnn Hickmanhttp://www.blogger.com/profile/11024569661733250122noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-5349668044326313600.post-49639241844595123272017-05-08T05:34:46.671-07:002017-05-08T05:34:46.671-07:00We waited 2-3 months for a referral to Community P...We waited 2-3 months for a referral to Community Paed's and then 18 months for a diagnosis. And only then because I called, and emailed, and harangued for a date because the LA lawfully removed all therapy support during the wait because he had neither a diagnosis nor an EHCP. Horrible horrible years. Anonymoushttps://www.blogger.com/profile/08810927991579960724noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-30450879213449914352016-09-05T21:07:21.701-07:002016-09-05T21:07:21.701-07:00If you are based in the UK then you might want to ...If you are based in the UK then you might want to look into an Education Health & Care Plan, which will detail what your child will need from the school soon. I've got done details on my site (search EHCP in the search box in side bar on the web version of our site) but you can also visit Special Needs Jungle / IPSEA for detailed information. Happy to have you here, hope my posts are useful. XxxAnn Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-71383022298888826462016-09-05T08:18:47.257-07:002016-09-05T08:18:47.257-07:00Hi, my 3 year old son is currently going through t...Hi, my 3 year old son is currently going through the assessment process. I am keen to have a diagnosis before he starts school next year so I can ensure he is placed somewhere with the right support to be able to reach his full potential. He will be 4 soon - if I don't get an assessment date before he is 4 then I have been told he will be put in the queue for 4-11 year olds and there is a 14 month wait for this where I live. Seems ridiculous - in the meantime children and their families are living in a very confusing state. Looking forward to reading some more of your blog. MumofTwohttps://www.blogger.com/profile/12090149729791890028noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-28587427428136162152016-06-20T08:52:00.509-07:002016-06-20T08:52:00.509-07:00It has honestly made such a difference. Thanks for...It has honestly made such a difference. Thanks for hosting.Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-11918403684465809332016-05-05T11:15:02.871-07:002016-05-05T11:15:02.871-07:00I am so glad you got an early diagnosis and your b...I am so glad you got an early diagnosis and your boys got the help they need. Thanks for linking up to #TheList x Anonymoushttps://www.blogger.com/profile/13171536428456990902noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-59575410554790477132016-03-02T16:11:13.446-08:002016-03-02T16:11:13.446-08:00That's terrible. It shouldn't be that all ...That's terrible. It shouldn't be that all this relies on the diagnosis, you should get support for what you need and a dx should just inform the professional more precisely about his requirements. Bully your GP if you need to get referred directly to things. Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-12444186751879902682016-03-02T16:09:14.519-08:002016-03-02T16:09:14.519-08:00It must have been frustrating. Glad you got the dx...It must have been frustrating. Glad you got the dx and have had some sign posting now. Hope you are better this week, see you on the linky xxAnn Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-87565245190642804372016-03-01T14:06:47.538-08:002016-03-01T14:06:47.538-08:00It is crazy the difference not having a diagnosis ...It is crazy the difference not having a diagnosis makes. They decided that my son didn't have autism and it shut so many doors that were previously open and helping him because it was assumed he'd get the diagnosis. The school choice being the biggest thing for us.PinkOddyhttps://www.blogger.com/profile/13660212941529518937noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-67407709712315288152016-02-14T06:38:53.665-08:002016-02-14T06:38:53.665-08:00Great post Ann. We waited three years for our diag...Great post Ann. We waited three years for our diagnosis, partly because we moved a few times due to my job and partly because the system just wouldn't allow it to happen any quicker. We haven't accessed much support since Hayden's diagnosis in November but at least I now know where it is if I should need it. Thank you for joining me this week on #spectrumsunday. I really hope to see you again this week xxAnonymoushttps://www.blogger.com/profile/04886733520652046512noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-58131748700001191362016-02-13T16:17:21.115-08:002016-02-13T16:17:21.115-08:00Glad you guys got the dx and support you need. Tha...Glad you guys got the dx and support you need. That's great.Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-55314400345119259242016-02-13T16:16:36.959-08:002016-02-13T16:16:36.959-08:00Absolutely, it's so unfair for others.Absolutely, it's so unfair for others. Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-39269414418878413962016-02-13T16:15:47.057-08:002016-02-13T16:15:47.057-08:00The right school is a big rock and one reason why ...The right school is a big rock and one reason why WE WILL NEVER MOVE ( or at least for the next 6 years). Glad your wait wasn't long. Are there any services you wish you had? We have an OT shortage at the moment and it's pretty frustrating. Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-17910874724566557402016-02-13T16:13:38.524-08:002016-02-13T16:13:38.524-08:00Agreed. Some people aren't sure they want a di...Agreed. Some people aren't sure they want a diagnosis. But if you want one and can't get it because of wait times that must be pretty hard to cope with! Thanks for commenting.Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-65063163018776408202016-02-13T16:11:53.826-08:002016-02-13T16:11:53.826-08:00That is awful. I believe the NHS target is 13 mont...That is awful. I believe the NHS target is 13 months (don't quote me). I've seen articles of people waiting six years via the NAS #whythewait campaign. By that time I'd probably have self diagnosed the boys but it's the access to services, education and support that I think would have really suffered. Our family would have found things more difficult as a result. <br /><br />It's quite simply not fair. Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-78537346760572942302016-02-13T11:39:30.185-08:002016-02-13T11:39:30.185-08:0022 months would be amazing in most of west yorkshi...22 months would be amazing in most of west yorkshire. Most wait much longer.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-6371685477730184332016-02-11T05:33:27.965-08:002016-02-11T05:33:27.965-08:00I can't believe how long people have to wait t...I can't believe how long people have to wait to get the help they need. Heartbreaking when the diagnosis can do so much good. Thanks for linking up to #TheList x Anonymoushttps://www.blogger.com/profile/13171536428456990902noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-78437036099039752452016-02-09T13:11:28.582-08:002016-02-09T13:11:28.582-08:00Wait times are terrible and I fear it is only goin...Wait times are terrible and I fear it is only going to get worse. We got through the process very quickly. I asked for referral in the June, we got a diagnosis in the February. Unfortunately our services aren't great here but I got the school that will hopefully help. <br /><br />Thanks for linking up with Small Steps Amazing Achievements :0)<br />x Jane - Our Little Escapadeshttps://www.blogger.com/profile/14374386125547193141noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-1233108671651570922016-02-09T07:00:03.658-08:002016-02-09T07:00:03.658-08:00I'm sorry to hear that. My heart honestly ache...I'm sorry to hear that. My heart honestly aches when I read it. As if we're not struggling enough sometimes, no one needs to have a struggle for the diagnosis on top of it all. Glad you now have it and it's making a difference. XxxAnn Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-84438356948608320172016-02-09T06:31:39.583-08:002016-02-09T06:31:39.583-08:00I so wish we had had a diagnosis at 4. It took sev...I so wish we had had a diagnosis at 4. It took several years and a struggle with an unsupportive school. I can't believe the change a diagnosis and a different school made.Alisonhttps://www.blogger.com/profile/14763649899250060735noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-29443282811377223882016-02-07T13:58:56.241-08:002016-02-07T13:58:56.241-08:00It's so true - our girl was diagnosed young an...It's so true - our girl was diagnosed young and I'm ever thankful for that. Am sure it made acceptance from everyone come sooner, and we've been blessed with a great school. Thanks for reminding me to count those blessings! Sad for so many others though xStephs Two Girlshttps://www.blogger.com/profile/09592292485187553690noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-70189172440100058892016-02-07T11:25:18.936-08:002016-02-07T11:25:18.936-08:00We're like you, our son was diagnosed at 4 yea...We're like you, our son was diagnosed at 4 years old and he has all the support that is available to him. I shudder to imagine how things would be without his diagnosis and I do feel for all those families who are struggling and waiting to get support. I guess we are very lucky. X #SpectrumSundayTracyhttps://www.blogger.com/profile/05571227724053042771noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-74974080811751456112016-02-04T14:22:47.838-08:002016-02-04T14:22:47.838-08:00In 22 months our kids would both have started scho...In 22 months our kids would both have started school before they'd have a diagnosis. Would have been soo much harder. Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-52348863082340181782016-02-04T14:21:37.629-08:002016-02-04T14:21:37.629-08:00Me neither!Me neither!Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-30170584807661468832016-02-04T14:21:12.938-08:002016-02-04T14:21:12.938-08:00I've obviously written this from the prospecti...I've obviously written this from the prospective of us as parents. Thinking about it again I think I'd change the last sentence to say 'People' instead of 'Parents'. You shouldn't have to wait for years after seeking diagnosis as an adult either! Ann Hickmanhttps://www.blogger.com/profile/11024569661733250122noreply@blogger.comtag:blogger.com,1999:blog-5349668044326313600.post-66917230648321284182016-02-04T09:50:46.028-08:002016-02-04T09:50:46.028-08:00Hugs to you. JD's diagnosis took 6 months from...Hugs to you. JD's diagnosis took 6 months from first enquiry to official letter. I had no idea how fast that was until I started talking to parents in other parts of the country. I completely agree that an official, on paper diagnosis is crucial to getting the support you need, especially at school in our experience. 22 months is much too long. AMummyToohttps://www.blogger.com/profile/07775632614112343350noreply@blogger.com